SURVIVOR TESTIMONY | BY: LISA EWING

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phillipley

I’M NOT SORRY I HAD CANCER….

That may sound like a really strange thing to say and before I go on, please let me say that I really don’t ever want anyone else to get it. I’m not glad I went through it, but I’m not sorry either! I say this often and I think my friends are all used to it now, but I probably need to explain myself a little better here.

I had a mammogram in March of 2009 that came back clean. Really I had that test done to accompany my 18 year old daughter. I wanted her to have her first gynecology appointment before she went away to college and I knew she wouldn’t go alone. It had probably been a few years since my last mammogram, which I can’t really explain as I used to get them yearly. Anyway, it came back fine and I went on about my business. But we had a new kitten, which was sleeping with us, and one night in July, he bumped into me. Just this little bump woke me up because it hurt. As I started feeling around, I remember thinking, “Please don’t let my husband wake up, because he sure won’t understand why I’m feeling around my chest like there is no tomorrow.” I felt a really hard lump and thought that was curious because it hurt and I had always heard that breast cancer didn’t hurt. I have four sisters and they have experienced a lot of fibroid cysts so I just assumed that’s what it was. But deep down, I knew better. My daughter was leaving for her freshman year in college in a few weeks and was all excited about sorority rush and well, I just didn’t have time to think or worry about this. So I put it to the back of my mind and decided I’d deal with it after we moved her to Starkville.

I ended up telling my husband around August 15, right after Bid Day at State. That way I knew he would make me go through with the appointment to see Dr. Barbie Sullivan. Also, I couldn’t imagine going to the doctor and then just calling him up and saying, “Oh, by the way, I have breast cancer”. Of course I was very cavalier about it, telling him that I knew it was nothing, but that I should probably get it checked out. He offered to go with me but I told him that I would involve him if it went past this first appointment.

When I went to Dr. Sullivan on Thursday, August 26, she immediately set me up for an ultrasound and a full workup with Dr. Phillip Ley. I left her office and went straight to the Radiology Group for the ultrasound. That was perhaps my first clue that I was in trouble. When the ultrasound technician told me to lay there while she went to get the radiologist, I started really panicking. I thought “Oh no, what if I don’t see my youngest child finish school and see them both graduate from college and get married? What if I’m not here to see my grandkids? This is really serious.” That is really the first time I was worried. When the radiologist came in he told me there was something there they didn’t like and they wanted me to get a full breast evaluation. Now that’s when I involved my husband!! We couldn’t get in to see Dr. Ley until Monday, August 31st and it was the longest weekend of my life. I was sure that I was in trouble, but no one would really tell me that.

That definitely changed Monday morning in Dr. Ley’s office. He walked into our exam room and said, “I just hate it when it’s someone I know.” I had no idea that he knew who we were at that point. Our kids go to the same school but we’ve never really socialized and I didn’t think he would have a clue who we were. Little did I know he would become one of my favorite people in the world.

Once he started the ultrasound he told me that while we would have the definitive results the next day or two from a biopsy, he had been doing this a long time and he was 99% sure that I had breast cancer. I’ll always appreciate that he told me that way because I had a chance to ease into the diagnosis. It wasn’t easy, but it would have been much worse if there had been some false hope that I was ok.

I was diagnosed with Invasive Lobular Carcinoma on September 1, 2009 and had a double mastectomy on Sept 22, 2009. In addition, the cancer was in 3 of the 17 lymph nodes that were removed on my right side. It seems like every time Dr. Ley walked into my hospital room, or called us, the news was getting worse. The tumor ended up being 6 cm x 6 cm and we went from thinking I was Stage 1 during the preliminary biopsy to being Stage 3A after the surgery biopsy.

This was followed with 8 rounds of chemo, 28 rounds of radiation and I’m still waiting to finish up my reconstruction surgery. In addition, after the 1st round of chemo, I came down with C-Diff (clostridium difficile) a really terrible bacteria in my colon that wiped me out for a while. I ended up in the hospital with dehydration and lost 40 pounds (which unfortunately is slowing finding its way home). The worst part of that is that it delayed my chemo a couple of weeks and I didn’t want anything to delay the END of treatment.

That’s the story of my treatment, but now for the part about why I’m not sorry it happened. I really think that going through breast cancer treatment had a profound effect on me and my family. I don’t worry about the insignificant things I can’t control as much anymore. I’m a type A person and I still want to control more than I should, but I can give that over to God now with much more ease. I also see the kindness in people where I may have missed it before. I was amazed by the spirit of the people who cared for me at every facility I used. I really loved the people that treated me at Jackson Oncology in both the chemo and radiation departments and I felt they cared about me. Dr. Ley, Dr. Scott Runnels and Dr. Tammy Young’s offices are full of the nicest people who see this everyday, but still make you feel that you are special. That’s an incredible gift to give someone going through a terrible illness.

I was also overwhelmed by the people from Jackson Academy and the Chapel of the Cross who brought us food all the time. Two or three times a week people showed up with full meals, and we didn’t always know them. That astounded me. It was such a help to my husband who was trying to work, come home during the day to help me shower and make sure I ate something then at night do laundry and care for our teenage son. One weekend he drove to Starkville for an hour because our daughter’s sorority was having a “Mom’s Club” meeting and he didn’t want her to not be represented. Then he drove home.

Mostly it has made me realize that I’m not afraid of all of this anymore. I’m not afraid to get sick and die. Everyone is going to go through their bad times and it’s how you handle it that helps define you. I want to be a person that makes the best of my life and helps others with their rocky patches and I think cancer has helped give me more reason to do that. By proving to myself that I can beat breast cancer and continue to live a happy, healthy life, I know that God has bigger plans for me. How can I argue with that?

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SURVIVOR TESTIMONY | BY: CYNTHIA STUART

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posted by:
phillipley

 
On September 11th,  2001, the Twin Towers of New York City fell and things have never been the same.
 
On September 11, 2003, my “twin towers” fell and like with New York City, things have never been the same. I’d like to share my story with you.
 
I had always been faithful about getting my mammograms and keeping my other medical appointments. Each year, the reports were good. I had almost talked myself into just going every other year to get my mammogram but decided to continue my regular, yearly routine. This was a very wise decision because this mammogram showed something that looked a bit suspicious and I was sent for a biopsy. After the biopsy I was told that Dr. Barum really did not think it was anything to worry about but we were going to be sure. For the first time in my life, I didn’t worry about it and came on home and went about my daily routine.
 
A few days later, as I was getting my hair cut, my cell phone rang. I have no idea what made me think that this was not going to be a social call. I was right. It was Dr. Payne telling me that the biopsy indeed had showed that I had in situ ductal carcinoma. I had no idea what that was other than I had cancer. At that moment, time stood still. Everything then started spinning. Everything was quiet. I felt all eyes on me as my stylist tried to steady me. I felt like I was in one place and everyone else in the world was in another. There is no way to explain this. I did not cry. I remember sitting down and looking up and telling my stylist that I had just found out I had cancer. That was my first time to actually say the word….cancer. She didn’t know what to do or say. She told me she could get me home or whatever I needed but I told her to just finish cutting my hair. (I do remember thinking that if I was going to die, I wanted my hair to look good). I sat there like a zombie.
 
The next part is really fuzzy. I do not remember leaving the salon or driving, but I wound up at my friend’s home not far from the salon. When she came to the door she knew something was wrong. I went inside and for the second time that day, I announced that I had cancer. I don’t remember a lot after that but we called my husband and he was there in no time.  Also,  another one of my friends came over. It may be because I have chosen to forget, but I do not remember much of anything else after that.
 
Skipping on ahead a bit , I was referred to Dr. Philip Ley and and he agreed to see me a few days later. He went over my options, gave me a day to think about it, then called me to see what I had decided. After much discussion and even more prayer, we decided on a lumpectomy. I was 47 years old and this was my first surgery ever in my life.  After the path report came back, the margins still were not clear so a week later I had a reexcision. When that path report came back, there was still some unclear margins so it was time for the big surgery.
 
The night before my double mastectomy was the first time I cried. I couldn’t sleep. I got up and went to the living room and talked to the “girls.”  I realized that I would not have them after the next day and was going to miss them. I cried for hours. My husband heard me and he got up and came in there where I was.  He held me, he listened, and he cried with me; After a while I felt better and I went back to bed and slept.
 
The next day, on September 11th, I had a double mastectomy. There were three weeks and three surgeries. A pastor friend of mine came in after my surgery. He told me I probably wouldn’t find much humor in it at the moment, but one day I could tell people that my “twin towers” also fell on September 11th. He was right, I did not find any humor in it at all that day.  As time passed, and the more I thought about it, the funnier it got.
 
The hardest part of all was the waiting to hear from the pathology reports to see if it had spread to my lymph nodes. It had not and so after my third surgery, I was told I would not have to have any further treatment.  This was wonderful news! Before my mastectomy, I had been sent to Dr. Scott Runnels to discuss reconstruction. After Dr. Ley had finished his part of the surgery, Dr. Runnels took over and started on the reconstruction process.
 
As proud as I was that I was through with surgeries, other than having my implants put in, one of the worst parts of my ordeal was the drainage tubes I had to wear.  It was so hard to find things to wear to the appointments and every time I entered the room, I felt like all eyes were on me. Of course they were not because others were there for the same reason. A friend took me clothes shopping. I tried so hard to find blouses with lots of ruffles down the front because I was flat as a pancake! Eventually, this all changed.
 
My husband was supportive and encouraging throughout all of this. He changed my bandages every day, bathed me, drained my tubes, and kept up with amounts and everything else that had to be done. I was beginning to realize how tough this was on him, but not once did he complain or show frustration. Friends came and called; sent cards, flowers, and food. I was beginning to realize more and more each day how fortunate I was.
 
After six weeks, I returned to teaching school. When I got to my room, my students had decorated the bulletin board with pink ribbons. Everyone was so gracious and supportive. The one thing I will never forget is what one of the coaches said to me one day. He pulled me over to the side and told me to walk tall and proud, and not fold my arms in front of me; that I was looking good and should be proud. That piece of advice and all the support from friends, family and doctors has stuck with me to this very day. Incidentally, that same coach came to see my husband and I every Saturday during my recovery, and he even would bring lunch!
 
Wanting to get involved and prove to myself and others that I was alive and well, I auditioned for a musical at a local community theater.  A few days after my final  surgery, I got the call that I had been cast as “Dolly” in the musical  Hello Dolly. I found some humor in this as I started explaining to my non-theater friends that this was not Dolly Parton! This experience was a wonderful blessing at a perfect time. I threw myself into rehearsals and enjoyed the performances immensely. On the final night, as the cast was singing “Hello Dolly,” I was coming down a staircase when the cast gesturing toward me; I begin to cry. It was then I noticed – most of the cast had tears in their eyes. When I took my final bow, I started to sob. For weeks the musical had kept me busy and worry free, but at this moment I started to think, worry and realize that it was back to every day life.
 
During my check-up with Dr. Ley the following week, I shared my worries with him. He asked me what it was I was worrying about and I told him cancer.  It was then he looked at me and told me that I no longer had cancer and that I should just get on with my life; enjoying every moment.  Oddly enough, Dr. Runnels had told me the same thing earlier…to forget about it and enjoy life.
 
So I did.
 
I became involved with the Susan G. Komen for the Cure. I wear my pink pin proudly as I share my own personal story as well as the wonderful things Komen for the Cure is doing toward research to end this dreaded disease. I have met so many people who are going through cancer. I have been blessed to encourage them and offer comfort and hope. I use lots of humor when talking with people.  We’ve all got to be able to laugh. This is imperative! Many people seem to get a diagnosis and then just give up! I have chosen to live. We have to get rid or the things that drain our energy so we can concentrate on recovery!
 
I have had many wonderful opportunities to speak at banquets, dinners, churches and many social events.  People are generally amazed at my sense of humor when speaking of what I went through. I visited ladies in the hospital prior to having a mastectomy, and had a “show and tell” session with them. I stay in contact with everyone I meet along the way. We sometimes meet for lunch and even go to the appointments with them. I remember how it felt. I want to be there for others just as people were for me. I will always be grateful for the wonderful team of doctors, nurses and support personnel I had. I continue to see Dr. Ley to this day. I never want to be discharged.
 
Although there are a few scars on my chest, I refuse to allow my heart to be scarred. I am a survivor! I must convey that attitude.  I never once asked “Why me?” Sometimes well-meaning people ask me how I am doing, but they ask it in such a way that they seem surprised that I am still here! My answer always is “I am blessed.”
 
My entire life has been changed by having cancer, but it has changed for the better! I sometimes think about recurrence, but it does not consume me. My eyes and my heart have been opened.  My faith is stronger and I am more outspoken than I was in the past.  As a dear sweet lady once told me, and I often quote her: “One day I am going to die but I am going to LIVE until I do!”
 
My favorite scripture is 1 Peter: 5: 7-11. It says: “Casting all your care upon Him, for He cares for you. Be sober, be vigilant; because your adversary the devil walks about like a roaring lion, seeking whom he may devour.  Resist him, steadfast in the faith, knowing that the same sufferings are experienced by your brotherhood in the world. But may the God of all grace, who called us to His eternal glory by Christ Jesus, after you have suffered awhile, perfect, establish, strengthen, and settle you. To  Him be the glory and the dominion forever and ever. Amen.”
 

And so it is that I continue to live. Blessings to all who read this.



 


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Survivor Testimony | By: Connie Barnes

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posted by:
phillipley

 
 
On August 11, 2007, I received the diagnosis of Breast Cancer. My life changed forever….amazingly for the better
 

Three years ago, I was a different person. If you were ever tasked with finding an example of a true “worry wart,” you would only need to peek into the life of the old me. Stress and worry over worldly matters controlled my days and my perspective was narrow and distracted. However, through a beautiful transformation, I left that burdensome identity behind and learned to live in the moment. I’d like to share this journey with you.
 

I grew up in a very loving family. The methods of structure and simplicity I learned from my parents as a child evolved into what I expect today. Although the demands of the day make it difficult to maintain this balance, I will never give up on it. I’m a “home” girl. There is nothing that sounds better to me than my children’s laughter, nothing that looks better to me than my husband’s smile, and nothing that compares to an ordinary backyard-family barbeque.
 

Years before my diagnosis, life was all but simple. As a mother of a teenager challenged with uncertainties and a few heartbreaking decisions, I felt that it was my responsibility to fix everything, yet my attempts to do so only failed. In the midst of adversities, I sought answers, but instead received conflicting advice from every different direction I turned. I worried endlessly, day and night, as most mothers do. I began to lose sight of the little things that really matter in life.
 

Day after day, I struggled with the discontent among loved ones and I could feel myself pulling away to avoid the heartache. I lost touch with dear friends in order to avoid having to face unwanted questions that either I could not answer, or didn’t want to consider. Perhaps, I feared revealing muddy shoes of blame towards myself for not having the answers. One day, at rock bottom and in complete despair, I walked out onto our deck and broke down and cried. I held my hands up, cupped together, and surrendered my worrying to God, asking Him to heal my life of brokenness and lead me down the path He planned for me. I made a promise that I would follow His plan for my life and asked that he use me in the lives of those that need me. There were days that followed in which my faith was tested and the accuser was tempting me with worry, but I refused to take back what I had laid at the foot of the Cross.
 

One summer night soon thereafter, I awoke from a deep sleep when my hand came out from under the covers and landed on a hard, grainy lump in my left breast. It felt different than anything I had ever felt before. With my heart pounding in my chest, I sat straight up in the bed. Without a doubt, cancer had always been my biggest fear. Even as a child, I was forever terrified of hearing the words, “You have cancer.” No friend or family member of mine had ever been diagnosed with cancer, but the mere thought of it haunted me. I knew nothing about it other than the fact that its treatment resulted in hair loss, and ultimately, it could be deadly. My annual exam and mammogram were already scheduled in roughly a month, so I denied intuition and chose to ignore the lump until that time. Even though apprehension lingered in the back of my mind, I refused to accept my potential condition because of my life-long fear of cancer.
 

Weeks later at the appointment with my gynecologist, I shed my denial and forced myself to inform her of my lump. She examined it, immediately sent me for an x-ray, and scheduled an appointment for me to see a surgeon, Dr. Phillip Ley. After further examination by Dr. Ley, he scheduled an MRI. The MRI revealed a very large tumor almost five centimeters in size, and nearly two inches in diameter. Dr. Ley informed me that a biopsy was necessary.
 

On August 11, 2007, the morning after the biopsy, I called Dr. Ley to find out the results. It was then when I heard the dreaded words, “You have breast cancer.” I was informed that, effective immediately, my next year would involve eight rounds of chemotherapy, a mastectomy, radiation, and reconstruction. It took quite a while to articulate my feelings upon hearing those words. I was numb. It was as if I was watching someone else’s life unfold from afar – not my own. It was impossible to grasp the true state of my health because I didn’t feel sick. I was at a loss in terms of responding to Dr. Ley’s diagnosis. Between treatments and effects of the disease, there was so much I did not know. I remember asking whether chemo or radiation causes patients to lose their hair. He responded sympathetically, “It is the chemo, sweetheart.” At that moment, for the first time, it occurred to me that no amount of worry or fear was going to change the inevitable. I knew this adversity was beyond me.
 

Moments later, after accepting my circumstances, I began to process the hand I was dealt and in turn, became remarkably fearless. I had an incredible, beautiful feeling of peace that only comes from God. I could feel Him next to me, holding my hand. For the first time in my life, I was not scared or worried about anything. I knew God was in control, had a plan for me, and was answering my prayers. Psalm 40:1-3, “I waited patiently for the Lord; he turned to me and heard my cry. He lifted me out of the slimy pit, out of the mud and mire; he set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will see and fear and put their trust in the Lord.”
 

I was amazed at this newfound peace and courage. Naturally, I was concerned about how my husband, our children, and the family would handle the news. The “fixer” of the family was now the “broken” one. However, when they witnessed my new-found strength and perspective, it was apparent that God’s transforming power was now working in all of our lives. Even in the darkest moments of this journey – through the side effects, illnesses, and surgeries – we were going to fill our days with lots of laughter, positivity, prayers, and faith in God.
 

When my husband and I met with my oncologist, Dr. Tammy Young, she carefully explained my diagnosis of Stage 3 Locally Advanced Infiltrating Ductal Carcinoma and the treatment thereof. We learned that my tumor was very large and that four rounds of chemotherapy would be administered in two-week intervals in an effort to shrink its size before any surgery could be performed. Once the mastectomy was completed, I would need four more rounds of chemotherapy, then radiation, and five years of estrogen blocking medication as my cancer cells were estrogen-receptor positive. Dr. Young was patient and thorough as we tried to comprehend the road ahead. In order to defeat the destructive disease that was locked inside my body, we took the determined approach of “whatever it takes.”
 

When my treatments began, I knew I was in the talented hands of the best team of doctors. One week after my first chemotherapy treatment, I experienced an unexpected bump in the road. Because chemo drugs not only kill the bad cells, but the good cells as well, patients must take extra precaution to combat germs which cause infections. When the good cells are destroyed, the immune system is weakened which makes it very hard to fight off infections. Much to our surprise, I contracted the West Nile Virus after being stung by a mosquito. I became extremely ill and was hospitalized with a fever as high as 105.9 degrees. Steadfast and strong, my family never left my side. Along with my doctors, they fought hard for my life while my body was helpless against the disease. I am truly grateful for the endless prayers I received from family and friends. I can attest that people on the receiving end of persistent prayers know first hand the outcome of those intercessions. After seven days in the hospital, the doctors agreed that I could go home after noticing signs of improvement. During my hospital stay, being two weeks after my first chemo treatment, I lost all of my hair and I was now wearing the turban. I was a real cancer patient, but without the violent fear of my circumstances.
 

Chemotherapy treatments were postponed until my body recovered from the damage caused by the West Nile virus. I was assigned a home healthcare nurse and slowly regained my strength. My chemotherapy resumed and after the fourth round, it was time for surgery to remove my left breast. Up until this point, my journey resembled a fast and furious whirlwind, to say the least. But as I moved into the next phase of treatment, I prayed for bolstered courage and strength in facing the exhaustion of the process and the indignities of my body being stripped of womanhood. In order to relinquish any future threat of recurrence in the unaffected breast, I made the decision to have both breasts removed. After a bilateral mastectomy, Dr. Ley conveyed the wonderful news to me and my husband that my cancer had successfully responded to the chemo drugs and there was no sign of cancer in my lymph nodes. He continued saying that this, along with removal of the breasts, put me in the optimal group for long-term results. After recovering six weeks from surgery, I received the final four rounds of chemo. It was then my doctors agreed that radiation would no longer be necessary as originally planned, and we could move forward with the reconstruction process. What a glorious day it was to hear that my cancer treatments were over and I was in remission!
 

I cannot begin to describe the depth of my gratitude for all the love and support I received from everyone in my life. I am so thankful for awareness, early detection, and yearly mammograms, in addition to my extraordinary team of doctors who cared for me throughout breast cancer treatment and the West Nile virus. I was so blessed throughout and for that reason, I am a Survivor.
 

I give my biggest “Thank You” to our Heavenly Father who awoke me from a deep sleep that mid-summer night to prepare me for a journey with Him that forever changed my life. I now see all aspects of my life in a brand new light and with a fresh perspective — fearless of adversity, fruitful in spirit, and hopeful with love for every moment of each day. Life is not perfect, but there is grace to be recognized in the good, the bad, the sad, and the ugly parts of our days. I am thankful for the abiding realization that we mothers do not always have the answers. This journey was a gift of hope, self-love, and forgiveness.
 

God knew my fears and he had a plan for me. For that reason, my journey is not over. There are thousands of women every year that are less fortunate in their experience with the disease and that is why I continue in the battle against breast cancer by helping to raise awareness with the hope that the future with be filled with more survivors, and even one day, a cure.
 

Worrying can result in depression and cause us to lose touch with our character and abandon our talents, hobbies, and interests. In order to prevent the disease assuming control, I believe it is important for cancer patients to live life as normal as possible while going through treatment. Different patients cope with their illnesses in various ways. For example, some alter their diet to incorporate healthier foods, others choose to meditate through yoga, and some consume their days researching the causes and cures of this disease. Although I tried all of the above, I found solace by immersing myself in my favorite hobby – interior decorating. Not wanting to waste another precious moment, my passion for decorating became a source of comfort and normalcy during the long days. My decorating was more than just surface changes such as paint colors and new pictures — I chose to engage in a massive renovation of our home with my best friend managing every inch of it. Everyday, I was eager to arrive home from work and admire the progress of the day. In a sense, the transformation of our home mirrored the personal transformation I was experiencing through my physical and emotional journey.
 

My advice to those who are battling breast cancer or to those who have a loved one affected by it, continue to fight with all of your might, love with all of your heart, and praise God for the blessings that come from your experience. Walk through this journey without fear, but instead with faith, hope, peace, love, and laughter. Let yourself bask in the happiness of simple things such as family backyard barbeques. Learn how to live.
So, if you’re looking for a worry wart, don’t look at me! My life is richer now than it ever was due to the lessons I learned through this journey. My perspective has shifted from temporal troubles, to eternal glory. I can now live life the way I believe God truly intended. So, let go, give God your fears, and trust that he has them in his control. I truly believe that God restores our joy through plans of His own. Mine just came in an unexpected package.
 

 

 

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Welcome to MBC!

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posted by:
phillipley

Welcome to Mississippi Breast Center’s blog. Look here for interesting information to be posted in the coming months, and be sure to join our social networks. If you have any questions or comments, we would love to hear from you. Thanks!


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